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The Quilt
Mom is back from San Diego; she arrived on the red eye this morning. I have many things to report from her journey out west and will do so in time. Tonight, though, I just want to share some...
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Notes from Germany, Day Two
Mom sent me her latest update around 2 a.m. her time after her very full first day in Germany. She talked with several families, including one “new” one – a father (whose son was diagnosed just a few...
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Notes From Germany, Day Four
I just read my mom’s latest CaringBridge entry and pondered how to summarize her words here for my last Notes from Germany post before realizing I could never tell the story as well as she has. The...
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The Bell Still Rings for T
Taylor and Santa share a moment in 2003 “At one time most of my friends could hear the bell, but as years passed it fell silent for all of them. Even Sarah found that one Christmas she could no longer...
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To Infinity and Beyond
Daniel Kerner always loved the outdoors. He loved to visit the ocean and mountains and feel the warmth of the sun on his face and the wind in his hair. He loved his family and friends. He loved life....
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Gene Therapy Trial Paves a Path for Other Diseases
Today, UNC Health Care announced an innovative, gene transfer-based treatment approach for children with giant axonal neuropathy (GAN). The treatment, developed by researchers led by Steven J. Gray,...
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